A terrible honor

Among my siblings, I support my mother here, my sister supports her father-in-law who lives in a nursing home a couple hours from her house in Iowa, and my brother brought his father-in-law in his home some months ago.  We each have our responsibilities to our senior generation, to one degree or another. 

I received an email from my brother, comparing his father-in-law, 'Ted', to my mother.  It was a lengthy email, more than I'd heard from him in some time, comparing functionality point-by-point.  Ted is much worse than my mother, and my brother and his wife do a great deal of the very-hands-on personal care.  Ted has difficulty (or complete inability) with all of the ADL's (Activities of Daily Living: continence, toileting, transferring, ambulation, dressing and personal care, feeding oneself).  My brother says that if Ted was in a nursing home, he would die, period.  

It was a "you are so lucky" email.  

And, yes, that level of care is not something that I am doing with my mother.  She can use a walker (though slowly with difficulty and frequent rest stops).  She can transfer with difficulty, very slowly getting out of her chair or bed and getting to her walker.  Both the continence and toileting part, she requires complete assistance from the aides at the assisted living home where she lives.  

So, yes, I do have an easier time than he does, though I have been visiting her almost daily for three and a half years, and suspect I'll do it for a couple more.  I would guess that his father-in-law will not survive as long.  His effort is much more intense but will be briefer; my effort is less difficult but much longer. 

My sister is a school teacher, and then spends entire weekends driving to and from visit her father-in-law, grading papers.  Then she has to go back to work on Monday.  Other weekends she comes here to Kansas City area to visit our mother.  

And, amid all this sacrifice, family issues from decades ago arise.  The competitions. The roles and labels we received then.  Old irritations.    

Each of us carries our load, our duty, our responsibility, to the previous generation.  

I told my brother that I view this as a 'terrible honor', to support someone as they approach death.  When elders are feeling vulnerable and helpless, when they can't control their bladder or bowels and feel shame, when they know they have just a short time left ... or, if dementia has robbed them of awareness, they may not even be aware of their fleeting future.  The responsibility can be terrible and overwhelming, but there is a great honor in being that person's sponsor, protector, facilitator, and friend/family at such a vulnerable time.